During a quiet moment, waiting for a return phone call on the first day back after the holiday period I was checking research resources on the American “StopAFib” website. I noticed that I am now listed as a resource under patient sites. https://www.stopafib.org/resources.cfm
I wasn’t informed, but I am very pleased and it cheered me up on a dull day.
I am not sure what the status of this website is at the moment; the associated forum seems to have moved over to the American Heart Association. http://www.heart.org/HEARTORG/ However, the owner of the Stop AFib site is posting on the AHA website as MellanieSAF, so probably still current.