I am still irrationally angry about this, but am told that this is a common reaction. I feel there is a major psychological side to it. There is an element of having prepared myself for a traumatic experience (I was not expecting this procedure to be much of a problem, but the first one was difficult so it must be there in my subconcious). But mainly, I was excited and happy to have the final hurdle in sight. Then it was suddenly snatched away.
My main problem is work. They have been very good to me, with time off, reduced workload and overlooking some of my memory lapses. However, on Thursday I travelled to Norfolk (230 mile and 6 hour round trip) to brief staff about an accreditation visit taking place on Monday. I will now be able to attend the visit, so all this time and effort by everyone involved was wasted.
I had cleared the next three weeks of the training and consultancy work that I do so I could have two weeks off, then a gentle reintroduction working from home. Some of this work has been reallocated internally, some has had to be subcontracted out at £750 a day; I am now available to do some of this work, but due to contractual arrangements, we would still have to pay the contractors.
The doctor had promised me a slot on 5th October, possibly earlier, but I have heard nothing official. Those weeks are now clear of work, because I expected to be recovering. I now need to clear work from the weeks afterwards, but can’t justify doing this until I have an official date.
My boss is very understanding and they have been very good to me over the last 15 months, but I wouldn’t be surprised if their patience is wearing a little thin.
It cost £25 for a taxi to the hospital at 6.00 a.m. I was admitted to the ward and blood samples were taken at 7:00 a.m. At 9:10 a.m. I was leaving the hospital; operation cancelled due to lack of anaesthetist. Before discharging me, the doctor had a word to explain why. I was aware that I was quite angry and frustrated about this, but tried not to show it. I was told that I would be rearranged for 5th October, and would have to have MRSA swabs before I left; I suspect that this was to make me feel like something had been done with me.
While walking out, I realised that I had no way of getting home; I had no money or credit card. The hospital arranged (and paid) for me to get a taxi.
I had great difficulty focusing on work for the rest of the day. I think I continued to get angrier as the day went on.
I am finding it difficult to concentrate; not just on work, but on leisure things like reading as well. I think it is nervous energy, excitement and family say fear, although I am not particularly worried about the procedure. Compared to the previous TTMaze, this is fairly minor; there are no incisions, no lung collapses and reflations, no drains and fewer, less invasive monitor insertions.
I have just received the letter officially informing me of the date and time of the procedure; unfortunately it also says I will not be allowed out until Friday morning. I have already booked the taxi for 6 a.m. to get there (£25) and Diana has arranged for a friend to help her find the hospital on Thursday night to bring me back. I may need to look at other arrangements for Friday morning.
Workload rearranged and recovery time off sorted. A little confusion at the hospital about whether to come off drugs or not prior to the procedure. Eventually, a decision was made ; stay on all drugs. Procedure agreed for Thursday 21st September at 9:30 a.m. with 4½ hours of catheter lab time booked.
I am ridiculously excited.
Received a call from the Northern General on the train back from London. The procedure will be 21st September; one weeks notice not so good for work, but I am pleased it is progressing. I said I would have to confirm and call back the next day.
Looks like things are progressing nicely again. I have no date for the procedure; the scheduling admin is on holiday until the 6th September. I am assured that unless I have MRSA, then I will be scheduled before the end of the month. Everything seems to be fine, the only issue is that Dr. Kyriakou insists that anticoagulants must be taken up to and including the day of the procedure, while everyone else seems to require that it be stopped the day before.
No more ectopics since the 14th of August, was it actually just a stress reaction?
I went for the ECG in suit and tie; strangely loads of other patients seemed to think I was an employee. ECG fine; back to waiting for an appointment.
I received a call from the research nurse, explaining that I was called while on holiday for a pre-op appointment, but they did not leave a message. It now looks lke the op will be late September or Early October. I mentioned the missing beats, she asked me if I could go for an ECG and bring along the Kardia printouts. I was going to be at a meeting in Sheffield on the 23rd, so I arranged to pop in on the way past.
I am back in NSR. Could this have been a reaction to the stress of getting back to work and the tooth extraction?
At Chesterfield Royal Hospital today for a wisdom tooth extraction. Doctor had agreed a mix of adrenaline and adrenaline-free local anaesthetic. It was generally not a pleasant experience, largely pain free in the area of the tooth, but needed a top-up of the anaesthetic half way through; adrenaline-free apparently wears off quickly.
I tried the Kardia again, this time there was a lot of arrhythmia, not just missing beats.
It could be that this is a reaction to the stress of returning to work coupled with the anaesthetic; I will monitor it throughout the day.